CONP Portal | Dataset
CP-NET: Hemi-NET Clinical Database Release
Is About: | Homo sapiens |
---|---|
Acknowledges: | Ontario Brain Institute, Cerebral Palsy Neuroscience Discovery Network, Government of Ontario |
Spatial Coverage: | Canada |
Other Dates: | Start Date: 2017-02-22 00:00:00 -- End Date: 2022-01-01 00:00:00 |
Description:
Dataset README information
CP-NET: Hemi-NET Clinical Database Release
Cerebral Palsy Neuroscience Discovery Network (CP-NET)
Overview
This controlled data release focuses on CP-NET's initial Clinical Database which solely focused on children and youth, aged 2-18, with a confirmed diagnosis of hemiplegic cerebral palsy (CP). The Hemi-NET Clinical Database has data on 320 children and youth from across Ontario. The released data is organized around the following platforms: (1) Clinical Risk Factor Platform: clinically relevant neonatal and obstetric risk factors from obstetrical and neonatal health charts, (2) Genomics Platform: saliva samples acquired from the index child and both biological parent(s), (3) Neuroimaging Platform: standardized coding of clinically acquired neuroimaging, (4) Neurodevelopmental Platform: standardized assessments of gross motor, fine motor, language, cognitive, behavioural function, and self-reported quality of life.
Data organization
Data is organized into packages by Imaging Scan Type, Genomic Data Type, and Clinical Data Collection Domain.
Access information
To gain access to Brain-CODE Controlled Data Release data, Study Investigators will submit requests via Data Release Portals at www.braincode.ca. These requests will be reviewed by the Brain-CODE Data Access Committee and the Brain-CODE Steering Committee. Learn more about these Committees in the Brain-CODE Governance Policy (https://braininstitute.ca/docs/Brain-CODE-Governance-Policy-version-FINAL.pdf). "
Visit the Brain-CODE Knowledge Base to learn more about our data releases.
Citation
Fehlings D, Krishnan P, Ragguett RM, deVeber G, Gorter JW, Hunt C, Kim M, Mesterman R. McCormick A, CP-NET Group. Neurodevelopmental profiles of children with unilateral cerebral palsy associated with middle cerebral artery and periventricular venous infarctions. Dev Med Child Neurol; 2021, 63: 729-735. https://doi.org/10.1111/dmcn.14818
The following instructions require a basic understanding of UNIX/LINUX command lines. Future portal functionality may include downloads directly from the web browser. Dataset download is currently enabled through DataLad.
Note: The conp-dataset
requires version >=0.12.5 of DataLad
and version >=8.20200309 of git-annex.
To install DataLad on your system, please refer to the install section of the DataLad Handbook (installation via miniconda is recommended in order to obtain the latest version of DataLad).
1) Initiate the CONP dataset
To initiate the CONP dataset (conp-dataset
), run the following
command in the directory where you want CONP datasets to be installed:
datalad install https://github.com/CONP-PCNO/conp-dataset.git
2) Install the braincode_CP-NET dataset
To install the dataset, go into the created conp-dataset directory and run
datalad install
on the dataset braincode_CP-NET
:
cd conp-dataset
datalad install projects/braincode_CP-NET
3) Download the braincode_CP-NET dataset
Now that the DataLad dataset has been installed, go into the dataset
directory under projects/braincode_CP-NET
.
cd projects/braincode_CP-NET
Note that files visible in the dataset are symlinks and will need to be
downloaded manually using the
datalad get
command in the dataset directory:
datalad get <filepath>
Note, if you run datalad get *
command, all the files present
in the dataset directory will be downloaded.