CONP Portal | Dataset

Neurodevelopmental Disorders Priority Setting Partnership
Creators: Ontario Brain Institute
Contact: Brain-CODE,
Licenses: Refer to Brain-CODE Governance Policy
Version: 1.0
Formats: CSV
Size: 447.0 KB
No of Files: 1
No of Subjects: 1264
Metadata file: DATS.json
Acknowledges: Ontario Brain Institute, Province of Ontario Neurodevelopmental Disorders, Government of Ontario
Spatial Coverage: Canada
Other Dates: Start Date: 2016-02-01 -- End Date: 2017-02-01
Surveys responses from individuals in the NDD community identifying treatments/interventions that should be prioritized for Neurodevelopmental Disorders

Dataset README information

Neurodevelopmental Disorders Priority Setting Partnership


A Priority Setting Partnership for neurodevelopmental disorders was started between the Ontario Brain Institute, associated members of the Province of Ontario Neurodevelopmental Disorders (POND) Network, and the James Lind Alliance.
This collaboration engaged the neurodevelopmental disorder community to identify questions that they think are the most important for researchers to address.
The data includes 1264 original questions submitted through a survey, 63 unanswered research questions generated from the original questions, and some de-identified respondent demographic data (i.e. type of respondent, associated diagnosis, and age range).

This project was funded by the Ontario Brain Institute.


The dataset could be requested via authorized access on
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