CONP Portal | Dataset
POND Registry Clinical Data Release
|Is About:||Homo sapiens|
|Acknowledges:||Ontario Brain Institute, Autism Speaks, Autism Ontario, Circle 21, Community Living Toronto, Ontario Rett Syndrome Association, Totally ADD, Sick Kids Down Syndrome Clinic, Province of Ontario Neurodevelopmental Disorders Network, Government of Ontario|
|Other Dates:||Start Date: 2012-02-02 00:00:00 -- End Date: 2019-11-01 00:00:00|
Dataset README information
Province of Ontario Neurodevelopmental Disorders Network (POND) Registry Clinical Data
Dr. Evdokia Anagnostou, Dr. Jason Lerch, Dr. Paul D. Arnold, Dr. Rob Nicolson, Dr. Stelios Georgiades, Dr. Stephen W. Scherer, Dr. Russell Schachar, Dr. Jennifer Crosbie, Dr. Peter Szatmari, Dr. Xudong Liu, Dr. Elizabeth Kelley, Dr. Muhammad Ayub and Dr. Karun Singh. POND Network
The Province of Ontario Neurodevelopmental Disorders (POND) Network is an Integrated Discovery Program funded by the Ontario Brain Institute, and aims to understand the neurobiology of neurodevelopment disorders and translate the findings into effective new treatments. Neurodevelopmental disorders investigated as part of this program include attention deficit/hyperactivity disorder, autism spectrum disorder, intellectual disability, obsessive compulsive disorder, Tourette syndrome, Rett syndrome, Down syndrome, Fragile X syndrome and any other genetic differences associated with neurodevelopmental disorder difficulties.
This controlled data release includes demographic, medical history data, behavioural and cognitive assessments for over 2000 children and youth diagnosed with various neurodevelopmental disorders as well as typically developing children and youth.
Data is organized into packages by Primary Diagnosis, Data Collection Domain, and Data Collection Form.
To gain access to Brain-CODE Controlled Data Release data, Study Investigators will submit requests via Data Release Portals at www.braincode.ca. These requests will be reviewed by the Brain-CODE Data Access Committee and the Brain-CODE Steering Committee. Learn more about these Committees in the Brain-CODE Governance Policy (https://braininstitute.ca/docs/Brain-CODE-Governance-Policy-version-FINAL.pdf).
The following instructions require a basic understanding of UNIX/LINUX command lines. Future portal functionality may include downloads directly from the web browser. Dataset download is currently enabled through DataLad.
conp-dataset requires version >=0.12.5 of DataLad
and version >=8.20200309 of git-annex.
To install DataLad on your system, please refer to the install section of the DataLad Handbook (installation via miniconda is recommended in order to obtain the latest version of DataLad).
1) Initiate the CONP dataset
To initiate the CONP dataset (
conp-dataset), run the following
command in the directory where you want CONP datasets to be installed:
datalad install https://github.com/CONP-PCNO/conp-dataset.git
2) Install the braincode_POND_Registry_Clinical_Data_Release dataset
To install the dataset, go into the created conp-dataset directory and run
datalad install on the dataset
datalad install projects/braincode_POND_Registry_Clinical_Data_Release
3) Download the braincode_POND_Registry_Clinical_Data_Release dataset
Now that the DataLad dataset has been installed, go into the dataset
Note that files visible in the dataset are symlinks and will need to be
downloaded manually using the
command in the dataset directory:
datalad get <filepath>
Note, if you run
datalad get * command, all the files present
in the dataset directory will be downloaded.